Spinal CSF Leak Foundation
Our mission: to help reduce the suffering of everyone affected by intracranial hypotension or spinal CSF leak
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This month’s latest research, registry news, awareness highlights, and resources from across the spinal CSF leak community.
Explore this month's Foundation updates, including research news, awareness, and highlights from the recent EDS 2026 Global Learning Conference
Celebrating exciting research, scientific advancements, a record-breaking leakweek, and collective community impact
From social media and proclamations to light ups and global awareness efforts, here are a few ways you can help make an impact during leakweek 2026
With your support, the movement for awareness, advocacy and research keeps growing
From research to awareness, here is what is happening across our community and ways to take action
Saving dates, highlighting new research, reaching a registry milestone, and sharing updates on awareness efforts.
Welcoming new board leadership, offering practical supports, advancing advocacy, and connecting our global community.
Bridging the Gap videos, new research highlights, resources from partners, and updates from the Foundation
A year of transition and growth, and the momentum carrying us into 2026.
This month we share a powerful BTG 2025 patient compilation video and video replays from IH2025, reflect on our accomplishments, and look ahead to 2026.
Join us this GivingTuesday by donating, spreading the word, or shopping to support the Spinal CSF Leak Foundation.
